Be Joyful in hope, Patient in affliction, faithful in prayer. Romans 12:12

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Thursday, March 19, 2009

Soakin' up some rays......

Yesterday we managed to hit the outdoors again. Jophie was likin' this day much better than the last course I "kinda" helped him out a bit with our teeeny little friend known as zofran ;0)

Whatever it takes to get this!


He does however tend to wonder from gazing ever so lovingly at me when a "certain someone" walks into his view.....At this point I know longer exist!


Who could it be? Hmmmmmm? Could it be his favorite red head? Yep! I love that he has so many people surrounding him that care so much for him. Tammy/Danny and the whole P. Gang are by far closest to him with the exception of me of course ;0) They were his mommy and daddy for a short period of time afterall. Besides, an extra mommy and daddy aren't such a bad thing to have would you say? ;0)

Now if Danny (Tammys Hubby) were to walk into his view Tammy and I would be no more important than the planks of wood on my deck! Yep! He snubs us big time when Dannys around!

Observe what I'm talking about......See it?

Oh yea we are no more than a vapor in the wind on this day back in the fall. Little Toad! haha

Today his feeling of happy go lucky is not so much. We've been on poooey patrol all day long. In fact we've been at it for several days now. Thinkin' I'm gonna have to drag out the big guns tonight. Nothin' new! Just another day in our life. ;0)

During the school year Tammy has to leave a bit earlier to pick up the twins so our time outside was short lived and Jophie was NOT wanting to come back inside but, you really need 2 when moving/lifting him so in we came. We got him all settled in the bed and lately when we stop something he loves doing he starts crying. It's pitiful really but at the same time I love it because first of all he's feeling well enough to actually enjoy what he's doing and second he's able to express that to me! Sad but happy at the same time especially when I can fix it which I did by the way. :0)

I tried sitting him up in the bed a bit which helped immediately. My thinking is Jophie knows when on his side he's going to sleep and at that moment he definitely was NOT ready for bed. I could tell it wasn't going to be enough and I knew I couldn't get him to his theatre seat alone so he could watch a movie SOOOOOOO....I brought the movies to him ;0)

Jophie enjoying one of his favorite movies! Madagascar 2! I had just started the movie and he was thrilled...

He's STILL watching it! Not sure but I'm thinking it's playing for the second time here...We knew he would love it because he has Madagascar 1 and it's by far one of his favs! The kid will watch it over and over again! Tammy bought him the sequal for Valentines Day! Thanks Tammy!

He didn't manage to make it sitting up the whole time....I had to lie him down so he could watch him from his side....You just gotta go with the flow of Jophie and his belly issues especially during those gotta pooooey times...

This afternoon we managed to clean/rearrange the area around his bed/under his bed and all the medical supplies around him. I even opened the windows to get some of this winter stuffiness outta here! Felt so nice! I can't do this very often because Johpie is so allergic to pollen in the spring and mold in the fall however, there are a few weeks before both seasons where we can enjoy the cool outside air AND I can dry clothes outside. We are in that time now hence all the laundry everyone keeps seeing strung all over my deck these days. The twins asked if they could stop at my rummage sale and buy something! hahahaha

OH and just in case you don't know this little trick I'll fill ya in....

If you open 2 windows in your house....One on each side of the house(Front and Back preferably) then, stick a fan in one of the windows making sure its backwards(blowing outwards) now turn it on high. It will suck ALL the heat/ winter stuffiness out of your house and at the same time will be pulling in the other window all the cool/spring/yummy smelling fresh air! Before you know it ALL the air in your house has been replaced! Ahhhh!

We did this all the time when we were kids at home. The only difference is my parents had one of those HUGE industrial fans and we had an upstairs. The fan was in the upstairs window and downstairs one of the windows farthest away would be open. It was cooler than air conditioning especially in the cool summer evenings and boy did it smell ever so good. Can I say Ahhhh just one more time?? :0)

It's nearly 11 p.m. now and all is well....No pooey relief as of yet but I still have a few more tricks up my sleeve ;0) For now Jophie is snoozing and eating all at the same time...He's so talented ;0)

I actually took a teeny break in the midst of this post to fix supper for Jophie and I. He needed some more blenderized food mixed up and it takes a smidge extra time to put it all together. The best part is once you get it all sorted out there's enough for close to a week if I calculate it right that is! haha

I never worry that he's not getting this or that vitamin/nutrient in his food because the formulas for tube fed kiddos are absolutely packed full of everything one would need meaning you can surive on that alone which Jophie has for gosh nearly 9 years! Personally, I just like tweaking things a bit adding my own special touches. I figure any improvements we can get for Jophie have to be a plus eh? ;0)

OK gotta scoot...I need to tackle whats in all the cubby holes of his hospital table...Tons of meds/supplies that need sorting...PLUS, bathroom is calling and so is Jophies timer.

Tomorrow is the first day of Spring! YAY! Have a wonderful First day of Spring!

Trina and Jophie

2 comments:

Lacey said...

Yeah for spring. He looks fabulous in the sunshine. Madagascar is one of my favorite movies to.

Tia said...

Oh Happy Boy! Fabulous!
Tia

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