Rain Rain go away.............

For a couple weeks now we've seen this.......

A whole lotta these.....

And a yard thats starting to really look like a jungle!

On the upside everything is a really pretty green. The flowers are dancing and the gardens full of fruits and veggies are wigglin' with delight as they drink from Gods watering can......

I really do love the rain. I even like walking in the rain although most of my walking in the last storm was more like "dodging" as the lightning bolts buzzed aimlessly around me. What we photographers do for a picture.

This is as close as I came to the rainbow that decided on "this day" it was going to be shy and hide behind the clouds.


Oh well I'm sure there will more rainy days and more rainbows. Lets just hope the next rainbows not so shy. :0)

Jophie is just on the verge of falling asleep. The Steroid Monster seems to have gone back in hiding at the moment. Seems he only comes out during the day usually right around the dose we lowered. Imagine that! No worries though! Jophie has a friend who always helps him through the rough spots. We'll just call him Ativan. ;) Soon we'll have a few weeks behind us and he'll be cruising right along leaving the Steroid Monster to eat his dust! That is until the next reduction .....Me thinks we will give him a few more weeks to adjust ;)

We have a big day tomorrow. Lora is back from vacation and will be here. Yay! We meet our new nurse this week. It was going to be tomorrow but I won't be here for part of the day. The twins have another field trip and I'm going to help out and take pictures. I have a few things to take care of while I'm in KY and then my plan is to head straight home so Lora and I can take Jophie outside for a bit. If I'm not completely beat I'm going to try and knock that grass down so it looks more like a yard rather than a jungle! Good thing is Tammy works tomorrow evening so even if I am pooped its OK cause someone will be here to tend to Jophie if I dose off. :0)

And that my friends is my cue to hit the sack!

Until next time.....
Trina and Jophie

My Sneaky little boy..........

This alone would have been enough...

Dear Mommy,
I know I have been keeping you busy. It makes me tired just watching you take care of me. It's almost Mothers day and I have been sneaking around a bit while you were napping. When you get time you need to check the mailbox. It isn't much (I don't have any way of making much money here in the house,) but its something to show you I appreciate what you do.
Love,
Jophie

Jophie strategically placed this in our comments section :0)

Sneaky little fella eh?

Imagine my curiousity and especially having to wait to daylight cause this momma sure wasn't looking in no mailbox (in the dark where snakes are surely lurking ALL BY MYSELF up by the road)!

NOPE! Not this big chicken momma! haha

Today I did however go take a peek to see just what my little guy had been up to at which point I found these...

They were tucked neatly in my mailbox and waiting ever so patiently to be rescued from their dark hiding place.......

Aren't they beautiful? Jophie knows his momma loves flowers and just how happy they make her ;)

He does however have a partner in crime :0)

A VERY sneaky partner in crime who seems to sneak around during holidays like Christmas and birthdays and even "just becuase" holidays. They make a great team really. Both are rotten and sneaky! ;)

And for all those who have emailed and asked "Who is this person named Anonymous"??

It would be none other than my dear friend Katy

At least I "think" its Katy :0)

Thank you Katy and Jophie!

Your sneaky little surprises continue to warm my heart and bring a smile to my face and on this Mothers Day I've had an extra skip in my step along with a big ole smile! :0)

I've managed a little bit of this....

Enjoyed a whole lot of this...

And this.....Oh yea! My grass still looks like its been cut! ;)

Realize I need gravel BAD when I snapped this.....

And now I'm off to do a bit of this......


While Jophie Does a whole lotta this.....

It's hard work planning special surpises for mommies ya know ;0)

Dear Jophie....
I'm so very blessed that God has allowed me to be your mommy and I'm especially honored that he entrusted you in my care. I LOVE being your mommy and wouldn't trade it for anything! :0)

I love you so much my sweet little Jophie!

And to my mom...Showin' off her farmers tan last Mothers Day :0)

I love you with all my heart. I'm sorry I wasn't able to spend the day with you. I hope you realize it was not possible. I will be out to spend a special day with you just as soon as Lora is back from vacation! :0)

A Sweet Birthday Boy........

That would be Jophie! Sweet 16!

Jophie wasn't feeling the greatest today. It was gorgeous outside and we had high hopes of taking him out to enjoy it. Once I realized he wasn't going to perk up anytime soon I brought the outdoors to him by opening the window and putting in the fan. We had a little bathroom dilemma but managed to get that all sorted thinking he would certainly perk up now!

Nope!

We still couldn't pin down exactly what was eatin' on him so we muttled on through the day trying to make it as good day for him as he possibly good tolerate. I sent the nurse after some last minute Easter necessities, lunch and some goodies for Jophie. While she was gone I took a quick shower and then gave Jophie a bath thinking that might make him feel a smidge better.

Nope!

Zofran and Benadryl it is then!

Success! Well not complete success but much improved and at the very least heading in the right direction. ;)

Just as the nurse was leaving I hear someone pulling in. It was Katy http://myersfamily-mom.blogspot.com/ who happens to be one of my close friends and also happens to be Jophies former aide of 10 years? Maybe it was 12 years? Gosh I can't even remember now. Anyway, as Jophies condition progressed the state deemed it necessary to employ only nurses due to his fragile state. We all understood but it still didn't make it any easier. It's so hard to find good help and all my girls have been with us from the get go. They are like family not to mention Jophie knows them all and trusts them as do I. When Katy left it was like part of our family left. I know Jophie still misses her as do I. I'm STILL on the hunt for a 3rd nurse. Any takers out there? I promise we don't bite :0)

Katy came of course bearing gifts like she always does! An adorable birthday card and the cutest singin', dancin', blinkin', toe stompin' bunny ever! Look up top at that grin on Jophies face. Yep! He loves it and has been smilin' all evenin' everytime I turn it on.

Shortly after Lora(One of Jophies nurses) made it home also bearing goodies. I had her pick Jophie up a happy meal. Yep! I blended up half that burger and bout half a dozen fries for the little guy! It's not something I want him to have all the time but by golly he was gonna have a happy meal if I had to run a steam roller over it so it would go through his feeding tube. LOL

I am only joking about the steam roller. I haven't came across too many things that I can't get through that tube! ;0)

I also had her pick up a balloon. He absolutely loves mylars and you can never go wrong with those. Lora bought him one as well and he was quite pleased with her choices. I ordered a creamed filled donut for his "sweet tooth" but decided to wait till tomorrow to let him enjoy the it. He's finally looking better and I sure didnt' want to bring back that awful shade of green that his little mug was sportin all day ;)

It certainly wasn't what I had planned for his special day but when do plans ever work out? I find when you "wing it" things tend to go much better. When I finally succumbed to the fact that the shade of green on his face wasn't leaving anytime soon thats when things starting getting better ;0)

His party is going to be next Saturday the 18th and I'm praying ever so hard he has a good day and can enjoy himself.

Today was by no means horrible in fact I'm very thankful that he has been feeling so well lately. Just last night I was reading over an archived post from his birthday/spring of last year. I plan to post that link along with his "party post" next weekend as a reminder to myself and everyone just how far he has come in a year ;)

I was in the kitchen blending up a little something to go with his formula and I heard a distinctive "trach giggle" I peek in and see this....

That bunny sure is funny!

This was about an hour ago....Check out how fast those bunny ears are moving! They are just a blur! LOL

And just to remind ME again how far he has come.......

Here's proof from a day outside last week ;)

He looks like he's gonna sock me a good one doesn't he? haha

He's sooooo relaxed. He almost looks like he's sleeping. You think he is?

Totally! LOL

OK I need to scoot. I hear Jophies timer heralding me and I just realized I haven't eaten supper yet. How I always manage to miss that is beyond me :0)

Happy Birthday Jophie! Momma loves you baby!

Trina and Jophie