........

Not much to say these days.....

Jophie is well aside from a little 24 hour "out of sorts" kinda day. A little boost of steroids/zofran/motrin mixed with a few extra duo nebs seems to have brought all vital signs back to "his normal" for now with a few extra smiles tossed my way making it possible to put one more step in front of the other.

Both annual doc appointments(Ped and ENT) went well(aside from his little foot getting banged up a bit during transfers) It's still a bit bruised but doesn't seem to be bothering him as much....

Baclofen has been added to his regimen of drugs.
Is it helping?
It appears so and at other times not so much...
The jury is still out....
For now we push forward hoping for good results..

Just realized I'd zoned off into whatever land it is I go to...
As of late I fear it's not Narnia....
If only I could find my way back...
I doubt I will anytime soon..

Anyone have a map?

And with that my brain has shut down refusing to dump the reality of its dark contents......

(Insert pink puffy clouds and fuzzy bunnies eating skittles and pooping rainbows here)

For visual effect of our "pretend reality" of course....