Be Joyful in hope, Patient in affliction, faithful in prayer. Romans 12:12

Living in Jophies Jungle Headline Animator

Thursday, July 1, 2010

........

Not much to say these days.....

Jophie is well aside from a little 24 hour "out of sorts" kinda day. A little boost of steroids/zofran/motrin mixed with a few extra duo nebs seems to have brought all vital signs back to "his normal" for now with a few extra smiles tossed my way making it possible to put one more step in front of the other.

Both annual doc appointments(Ped and ENT) went well(aside from his little foot getting banged up a bit during transfers) It's still a bit bruised but doesn't seem to be bothering him as much....

Baclofen has been added to his regimen of drugs.
Is it helping?
It appears so and at other times not so much...
The jury is still out....
For now we push forward hoping for good results..

Just realized I'd zoned off into whatever land it is I go to...
As of late I fear it's not Narnia....
If only I could find my way back...
I doubt I will anytime soon..

Anyone have a map?

And with that my brain has shut down refusing to dump the reality of its dark contents......

(Insert pink puffy clouds and fuzzy bunnies eating skittles and pooping rainbows here)

For visual effect of our "pretend reality" of course....

4 comments:

Colleen said...

It's much easier to live in rainbow land....and then you wake up...aaaahhh! I'm glad you updated us on how Jophie is doing.

Becky said...

Good to hear from you...we miss you here...Know that you are loved by many.

Anonymous said...

Hey sweet lady, It has been so long! I just found your blog. I am happy to finally reconnect with you.

Jackie
pretymedesigns

Anonymous said...

I came across this blog by chance as I was searching for a happy 'reaction face' in order to post on a forum I frequent and saw a picture of Jophie in ICU and was struck by how happy this kid looked.

I was teary when I read through some entries in this blog, not from sadness or pity but from sheer emotion from the overwhelming way in which you dedicate yourself for this kid and fight every day for the next smile :)

I think (in my non-existent experience) that what you are doing is truly amazing and hope your life with J gets ever better. x

R.

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