Be Joyful in hope, Patient in affliction, faithful in prayer. Romans 12:12

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Saturday, May 15, 2010

Tuckered......

I'm still absolutely zapped....

I was hoping this weekend would prove to "heal this restless/weary body"....... Not sure if that's happening just yet. I do feel better but not quite well yet.

My days consist of literally "hoisting" my body to an upright position.... Forcing myself to move has proven to be a daunting task and staying awake is even harder.

My neck hurts. My shoulders ache. My arms feel like lead. My legs feel like lead. I have no appetite at all. I look like a ghost. I'm dizzy beyond anything I've ever felt. You know that kinda "out o' body" dizzy where you move and your body slowly catches up later. I spent most of last night rolling around in living room chair fitfully with stomach pain drifting in and out of my drug induced sleep. I suspect the doxy is the culprit of my lingering plague like symptoms. At least that's what it seems like. Only 3 more days of the doxy and steroids. I long to toss them in the creek but, I know I must not stop lest this hooey booey black plague returns. I shiver at the thought.....

I have new sympathy for Jophie and his steroid monster. I've always sympathized with him knowing his little body was being ravaged by the effects of the constant roller coaster ups and downs as we struggle to find a happy balance that will keep him alive without killing him at the same time.....

I've only experienced 2 weeks of this and I'm a weepy/grouchy/jumpy/jittery/whiney butt mess......

Steroids!.......... Love em/Hate em

Thank God Jophie has been so good throughout all of this. Thank God he's not demanding in a "normal" kinda way. Granted he is "very demanding" in that he requires ALOT to keep him alive and going. His schedule would seem grueling to most. To me it's just loving Jophie.....

I thank God every day for Tammy and Lora. Without them Jophie and I could not make it especially when momma is flat on her back.....

Tammy works tomorrow. I'm thinking it's her 6 hour day. I'll be glad to have a little break again....

Next week I'm back to work full time working Monday through Wednesday so far along with a trip to Spare time(Sugar creek munchkins Scriptural Excellence field trip)/Baby Shower Tuesday evening(If I can get someone to sit with Jophie a couple hours)/Mints and tricycle to make for said shower/Family Fun Day with the Sugar Creek Munchkins for last day of school.....Will have to try and fit a trip back to WV to see my doctor this week for a followup and to inform her of all the "setbacks" I've had with allergic reactions and such....

Phew....Making me more tired just thinking about it all

Think I need to go figure out Jophies meds/food before I crash again in the chair.....I've really messed his food/med schedule up today...Imagine that

Hoping next week my body will rally.....My house is a mess and my grass hasn't been cut for over 2 weeks.

I HAVE to get back on track....

Off to assume the "slug position"

Trina

3 comments:

Doorless said...

Still praying you are better soon. I cannot imagine how hard this has been!

Becky said...

Goodness! You make me tired just reading your post. We are praying for you!!!

Lacey said...

Hey sister. Jax does have a bivona. And really the only reason he does is because he has custom trachs, and shiley doesn't do custom. But I love his trachs. the main reason I love them is because they aren't in a v shape in the front like the shiley. Jax has no neck, so theses coming straight out doesn't cut into his chin!

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