Damaged Goods or Masterpiece?It's all in the eyes of the beholder....
Psalm 139: 13-16
Trina


Time check before I close my eyes revealed 5:30 a.m. Ahh a bit earlier than my norm. Yay!
9 a.m. I hear the rap tap tappping on my window of Jophies nurse. It's the ONLY way they can wake me up. ;) I staggered to the door and let her in then staggered and stumbled my way back to my bed for another 2 hours of sleep! Yay!
11:00 a.m. Bathroom duty calls. I'm still sooooo sleepy and have been for a few days now. I just can't seem to get caught back up. Such is life. Before I open my door and enter the world of the living I spend about an hour on the computer checking emails/checking on friends/answering questions/working on M4W again all the while trying not to give myself a concussion each time my head bangs on the keyboard.
12:00 p.m....I think I'm hungry which really means "let me think about what I might like to have for the next few hours all the while lets find something crunchy to munch on to help me think better" Not the best thing to be doing but if anything the "crunch! crunch! crunch!" of my little snack is keeping awake and that my friends is a good thing!
1:00 p.m. ... I've finally decided on what sounds good to eat so I send the nurse for a few things from the grocery store and to pick up a sandwich. Mind you my food situation even though its been decided has still not made its way to hands much less my mouth.
The timer goes off shortly after the nurse leaves for our goodies which means I now have to figure out what part of his schedule he happens to be at. Meanwhile I'm still rubbing my bleary eyes and trying to clear the cobwebs from my brain. Gave Jophie some carafate then hooked him up to his water infusion. Set his pump and now its workin for me! ;0)
Walked out on the deck just so I could say I stepped outside and to feel the nice fall breeze. The smell was nice too! Ahh fresh air! Nurse gets back around 3 p.m. just in time to fix Jophies meds and NOW I can eat!
Jophies gets hooked up to meds and food and the nurse and I try to decide what fire would be the most important to put out before he needs his trach cleaned. I made a few phone calls to medical supply places. I had tons more calls to make but I was spent after those. Theres always tomorrow! ;0)
4:00 p.m....Time to get things ready to clean Jophies trach and by 4:30 p.m. we are doing just that! Cleaning his trach and changing the trach collar.
5:00 p.m. Nurse leaves and Jophie and I are back to wingin it alone again. Jophie needed flipped/changed again along with the soggy wet bed pad. I turned on his pumpkin light then sat down to flip through the channels. Flip! Flip! Flip! I suspect I'm a bear to watch tv with! Flip! ;0)
6:00 p.m.....Time for water infusion. Set his pump and drew up his carafate then set timer for carafate. Bathroom break again. I sometimes forget that you know ;)
7:00 p.m.... Gave Jophie his carafate then back to the computer to work a bit more on M4W.
8:00 p.m.....Back to tv to watch some of my programs. Well "try" to watch is the key word. Most days I'm more like Jiffy Pop than anything! 8:30 p.m. time for Jophies meds to be smashed and put to soaking. Flip Jophie/change diaper and bed pad again. After I got him settled on his least favorite side the meds were ready.
9:00 p.m....Shoved his meds in and started his tube feeding. Set timer to keep track of his 20 minute slow bolus of his formula which has just made my stomach rumble. Ah yes food. You know your hungry when your belly rumbles for Novasource Pulmonary! LOL
I mosey on into the kitchen and stare into the fridge trying to will something to jump out and fix itself. Didn't happen. Peeked into freezer and nothing up there was very helpful either. I guess I'm just gonna have to cook it myself.
Hmm....Hot dogs are lookin pretty tasty about now especially since I know I can slap em in the microwave and they can be on a plate with mustard in a minute flat! Hot dogs with mustard it was! Grabbed me some punch flavored water and a pill for ME this time.
9:30 p.m. I'm sitting in my chair Flip! Flip! Fliping! the channels and munchin on my hot dogs. Ahhh another bit of rest.
10:00 p.m....Tossed my paperplate in the trash and washed up the few tubes/syringes/bottles that had accumulated of Jophies. Sterlized some water and filled Jophie some bottles of water up for the next day. Straightened up a bit and thought about a shower. Just thought about it mind you. ;0)
By this time its nearing midnight and Jophies all Mr. Soggy bottom U.S.A. again! Changed that soggy mess including the bed pad then gave him another pancake flip back to his favorite side! Gave him another dose of carafate and finished up his tube feeding.
Messed around on computer till 1:00 then smashed up Jophies meds and got them to soaking again. Now just go up top and re-read what I did starting at 1:00 a.m. then fast forward to now at nearly 4 a.m.! Holy cow! I think I musta ran one day into another!
I need to go so I can at least "try" and hit the sack by 5:00 or maybe 6:00. We shall see!
Trina