Alive.....

That we are......

Jophie is well and we're gearing up for fall. Bacon boosters are looming on the horizon. I hear tale it will be included in the yearly flu vaccine making for only one jab. One jab is always better than 2.

Busy busy on the home front. School is back in session and so is my job. Feeding hungry munchkins each week among many other hungry mouths. Second job is in full swing as well making for one crazy momma always praying when I sit my butt in the car that I don't end up at the wrong job(Not that anything like that has ever happened)

I'm grateful for both jobs and the extra funds as Jophies needs are still very present. Praying I can hold out and continue pushing forward. It's only been 2 full weeks and I must admit I'm a bit pooped at weeks end. My body tuckers more with age and just when I think I can not take one more step....

I just remind myself that "This is ALL for Jophie" and the steps that once seemed impossible come easier one by one.

I'm off this weekend but I have so much to do and really no idea how I'm going to fit it all in...

1. Pool needs Baquacil, need to buy Baqua, pump needs to run for 24 hours and then closed for the winter..
2. My hair needs cut...
3. Paperwork needs dropped off to second job plus pick up check..
4. Go to bank....
5. Medipore needs picked up for Jophie....
6. Grass needs cut BAD/Need to buy gas for lawnmower since it took 6 tanks and 4 hours last time I cut it! UGH

Fingerprints STILL....

3 attempts and no luck. Now to make an appointment with education dept. who can accept as little as 2 prints(One from each hand) and they can do each digit individually whereas other places have to do all 4 fingers at once. For the record the tips of my fingers have a lot of scarring(Working in medical field for years/hand washing-germ-x-alcohol use) AND my hands/fingers are too weak to press hard enough preventing the prints from being accepted. Crossing fingers I can get an appointment and they can get at least 2 acceptable prints.

I'm hoping to get Jophie out a bit in the fall/cooler weather and a current fall picture. Will share when/if he's able and I'm able.....

Now I'm off as I'm nowhere near hitting the sack....Praying I can make it by 3 a.m

We shall see...

Trina and Jophie

........

Not much to say these days.....

Jophie is well aside from a little 24 hour "out of sorts" kinda day. A little boost of steroids/zofran/motrin mixed with a few extra duo nebs seems to have brought all vital signs back to "his normal" for now with a few extra smiles tossed my way making it possible to put one more step in front of the other.

Both annual doc appointments(Ped and ENT) went well(aside from his little foot getting banged up a bit during transfers) It's still a bit bruised but doesn't seem to be bothering him as much....

Baclofen has been added to his regimen of drugs.
Is it helping?
It appears so and at other times not so much...
The jury is still out....
For now we push forward hoping for good results..

Just realized I'd zoned off into whatever land it is I go to...
As of late I fear it's not Narnia....
If only I could find my way back...
I doubt I will anytime soon..

Anyone have a map?

And with that my brain has shut down refusing to dump the reality of its dark contents......

(Insert pink puffy clouds and fuzzy bunnies eating skittles and pooping rainbows here)

For visual effect of our "pretend reality" of course....