Be Joyful in hope, Patient in affliction, faithful in prayer. Romans 12:12

Living in Jophies Jungle Headline Animator

Saturday, May 15, 2010

Tuckered......

I'm still absolutely zapped....

I was hoping this weekend would prove to "heal this restless/weary body"....... Not sure if that's happening just yet. I do feel better but not quite well yet.

My days consist of literally "hoisting" my body to an upright position.... Forcing myself to move has proven to be a daunting task and staying awake is even harder.

My neck hurts. My shoulders ache. My arms feel like lead. My legs feel like lead. I have no appetite at all. I look like a ghost. I'm dizzy beyond anything I've ever felt. You know that kinda "out o' body" dizzy where you move and your body slowly catches up later. I spent most of last night rolling around in living room chair fitfully with stomach pain drifting in and out of my drug induced sleep. I suspect the doxy is the culprit of my lingering plague like symptoms. At least that's what it seems like. Only 3 more days of the doxy and steroids. I long to toss them in the creek but, I know I must not stop lest this hooey booey black plague returns. I shiver at the thought.....

I have new sympathy for Jophie and his steroid monster. I've always sympathized with him knowing his little body was being ravaged by the effects of the constant roller coaster ups and downs as we struggle to find a happy balance that will keep him alive without killing him at the same time.....

I've only experienced 2 weeks of this and I'm a weepy/grouchy/jumpy/jittery/whiney butt mess......

Steroids!.......... Love em/Hate em

Thank God Jophie has been so good throughout all of this. Thank God he's not demanding in a "normal" kinda way. Granted he is "very demanding" in that he requires ALOT to keep him alive and going. His schedule would seem grueling to most. To me it's just loving Jophie.....

I thank God every day for Tammy and Lora. Without them Jophie and I could not make it especially when momma is flat on her back.....

Tammy works tomorrow. I'm thinking it's her 6 hour day. I'll be glad to have a little break again....

Next week I'm back to work full time working Monday through Wednesday so far along with a trip to Spare time(Sugar creek munchkins Scriptural Excellence field trip)/Baby Shower Tuesday evening(If I can get someone to sit with Jophie a couple hours)/Mints and tricycle to make for said shower/Family Fun Day with the Sugar Creek Munchkins for last day of school.....Will have to try and fit a trip back to WV to see my doctor this week for a followup and to inform her of all the "setbacks" I've had with allergic reactions and such....

Phew....Making me more tired just thinking about it all

Think I need to go figure out Jophies meds/food before I crash again in the chair.....I've really messed his food/med schedule up today...Imagine that

Hoping next week my body will rally.....My house is a mess and my grass hasn't been cut for over 2 weeks.

I HAVE to get back on track....

Off to assume the "slug position"

Trina

Tuesday, May 11, 2010

I think I might just live......

9 days later....
17 pounds down(and still counting) later.....
27 probiotics (and still counting) later....
72 benadryl(and still counting) later....
7 diflucon (and still counting) later....
3 Bactrim DS(Causing one ginormous allergic reaction) later....
8 doxycycline(and still counting) later...
21 prednisone(and still counting) later.....
1 thousand fifty hundred motrin later....
5 million two hundred thirty-seven and a half hives(with a few strays hangin' around) later.....
2 trips to doc later....
1 trip to ER later....

Stir in a few BP meds, inhalers and crazy pills + 1 nurse and 1 dear friend(who just also happens to be Jophies nurse)to keep your child alive and just for kicks keep you breathing as well!

Add all ingredients, stir well and you have yourself one certified looney bin...
(0 calories/0 Fat grams--Serving Size/As much as you can hold at one time)

Wanna come play with us?..

I dare you ;))

Now to survive...

7 more days of doxy.....
7 more days of prednisone....
a few more bazillion benadryl...
a few more bazillion probiotics...
1 trip to camden park(maybe if I can stay verticle for more than it takes to pee)...
1 fun day as SCCA...
7 days of my lovely uninvited visitor(I'll call her Dotty) who just decided to stop by this evening....
1 attempt to return to work by Friday with only 2 other "crazy notions" (From my own private Narnia) where I "thought" I was (Up walking around) and able to return to work but now with a somewhat "not so fuzzy head" realizes that said horizontal position wouldn't be the most ideal way to drive.

Sure glad Tammy's head was clear (NOT in Narnia with me) cause obviously I wasn't aware(Completely knocked out) that horizontal for 23 hours for 8 days does NOT constitute "being well enough" to work and even less the idea that I was standing verticle....

Note to self: Think of it all as just ONE BIG bonus!
Love those bonuses!

Kinda like getting shingles along with.....(insert any ole plague like illness you'd like here)

JOY.......

I think I might just live..

REALLY...I......DO........

~~Twitch Twitch~~

Saturday, May 8, 2010

Rash? What Rash?.......

Ahhhhhh.....

You mean the one that pretty much envelopes my whole body. Gotcha!

CRaaaaaaaazy past few days and since I'm heading towards WV very soon I'll give you the short version...

  1. Deoderant and me do not mix
  2. Tried all natural deoderant with no antiperspirant
  3. I might as well of stuck a hot poker to my pits(I'm sure it would have been less painful)
  4. Seems I am now allergic to all forms(Joy....And I'm certain Tammy, Lora and the world around me will feel the same)
  5. Then I shave....Break skin(NOT much at all) Used said deoderant still not knowing it was the culprit.
  6. UGH
  7. Lovely skin pet inhabitants that all seem to think we need exited the building into said skin breakage.....
  8. Now we have fungus amongus living in their newly found home.(My left pit to be exact) And if you will recall ME and Fungus do not mix usually requiring looooooong periods of persuasion just to convince them of this. (With the help of skin pet killer of course)
  9. ITCH ITCH
  10. UGH
  11. Travel to WV on Monday to see my doc...YEP you have inhabitants that have gone awry my dear(AND you have hives all over your back/sides)
  12. Diagnoses of that....Systemic reaction compliments of my lovely fungus fellers...
  13. JOY
  14. Take this and this and rub this on and that and and and....
  15. Yea Yea I know the drill...
  16. Travel back to Ohio with "said cure" in hand(I had my doubts)
  17. Worked Monday and Tuesday (Barely without falling over, puking or passing out)
  18. JOY
  19. Rested on Wednesday in one of Jophies comfy chairs...Directly under ceiling fan...pits pointed to the heavens....ceiling fan on high....drugged to the max and well just plain miserable
  20. Thursday work again.......ONLY
  21. It didn't happen....
  22. Book fair at SCCA so knew Tammy would be there..
  23. Stop...locate Tammy who knew immediately I was quite ill
  24. She and her expertise(Those fancy little letters after name) informed me of this verbally now(If she were mute her gasp and horror stricken face would have sufficed)
  25. I agreed as I staggered my way to kitchen sweating, shaking, fighting off the nausea monster and generally just trying to keep my body in the upright position
  26. Gathered all said items Heidi needed for shop and tossed them to Tammy and Carla
  27. Tammy calls Heidi and informs her of my dilemma and before anyone knew what hit them....
  28. Out the building I went leaving only a slight taupe blur headed towards WV(Praying all the way I could just make it to the office...)
  29. Worthy to Note: Tammy was going to drive me but my mind was going in one direction....WV
  30. Phone was turned off so didn't get that message......
  31. Instead she was productive and covered for me at Heidis.......Fed the Sugar creek munchkins too! Thank you Tammy....You know I love you ;)
  32. Note to self: Turn volume up on phone because really it would have been a good idea to let someone else drive on that day....
  33. Get seated in exam room and prop self up on anything that looks like it could hold a woman with "said skin pet disorder" who was about to topple over..
  34. Enters my doctor...
  35. Informs me I look "sick"
  36. YEP.....
  37. I'll take "Now tell me what it really is" for 100 Alex
  38. Gasp and one more horror stricken face...
  39. Blink......Blink
  40. Clears throat...
  41. Doctor?
  42. Blink...Blink
  43. Oh I'm sorry....Just weighing our options here...
  44. JOY
  45. Infected (Check!) Inhabitants still living in said new home (Check!) VERY ill(Check!)
  46. Bug Juice(s) of choice on this day...
  47. Bactrim DS.....Long steroid taper....More "skin pet" medicines(I think it's worthy to note that when not going awry or trying to change addresses these pets are "so I'm told" quite useful)
  48. The jury is still out on that one......
  49. Head back to Ohio with more "miracle cure" in hand..
  50. Shovel boatload of said cure into pie hole and collapse in comfy chair.....
  51. 24 hours later.....(Friday to be exact)
  52. Woke up 4 a.m.....bottom of feet ITCHING like mad
  53. Realized itching potions were late....
  54. Downed and rubbed on said itching potions(Otherwise known as benadryl)
  55. Fall back asleep(Sort of)
  56. Enters Tammy to work....
  57. I hear nothing...
  58. Zzzzzzzz
  59. Finally I come to and realize it's Friday and she's sitting right next to me charting...
  60. Phew! Glad someone took care of Jophies meds
  61. Few seconds pass and I realize my face is itching....my eyes are itching...my feet are itching...my back is itching...
  62. OK so everything is basically itching...
  63. Tammy(with those fancy letters after name) diagnoses me with rash/hives most likely due to the Bactrim DS
  64. OK so now what?
  65. Lower back has been pretty much covered since Monday with a few other spotty places(from systemic reaction to the yeast in my body) but NOW....
  66. Oh my....
  67. Fall back to sleep after shoving more drugs in pie hole trying to dream only of things that are cold and don't require scratching....
  68. Wake again at some point from drug induced sleep and realize its 2p.m. and time to help Tammy change Jophies trach collar...
  69. Shift is over and she leaves....Gone "maybe" 30 minutes when I take a gander at yet MORE itching....
  70. A close inspection revealed well ......
  71. Rash, hives, splotches and anything else red you can imagine occupying just about every empty spaceI have except my legs...(For now)
  72. AND.... those darn feet and hands were STILL itching....My feet on the bottoms is almost unbearable....
  73. Asked Tammy to stop by and look AGAIN at my lovely rashes/hives(Thinking she will be quite happy for this to be over since it just occurred to me that being forceably subjected to view this mess might not be well enjoyable) My somewhat clearer head thinks that anyways... LOL
  74. Tammy arrives to be subjected to this brutal viewing "yet again"... YEP more hives....Still same dignosis..Bactrim DS.....My eye spies her hands as she came bearing AAaaaaaaaveeeeno and food.....(Don't you just love best friends?) And it doesn't hurt that she has those fancy letters after her name either ;)
  75. Climb in bath of Aveeeeeeno and can I just say I've not been in a bath tub for YEARS...I only take showers...
  76. Fat woman in trailer sized tub, bad knees, very little squatting ability and clumsy to boot does NOT make a good combination.
  77. I finally manage to sit(Kerplunk down with a splash) with no thought as to how I would pull my self from this watery, oatmeal floating pool.....
  78. Let me just say it took ALOT of manuerving and positioning to get all parts submerged(Never at one time mind you)
  79. AND...I did manage to hoist myself out fueled by visions of Monday morning arriving and Lora having to call Tammy to bring her key cause I wasn't answering door...Can you just picture it? Fat woman wedged in tub of oatmeal goo covered in hives all swollen and said nurses using Jophies hoyer to unwedge that mess! LOL Bet you woulda found some super human strength and hoisted yourself out real quick too eh?
  80. Body is soothed for the moment.....more drugs shoved in pie hole and more feet itching and body itching and and and....
  81. It's 9 a.m. now and hot shower I took was not wise.....All nerve endings are stimulated and all hives are standing at attention....( I know Tammy I know better but Ahhhh I could just scream from the itching)
  82. Getting ready as we speak to shove more of (said cure) into pie hole..
  83. Plan of action is to head to WV ....AGAIN
  84. I HAVE to get this antibiotic replaced or I'm going to be in the same boat....As I'm typing this I can feel the pain returning as it shoots hot pokers through my arm, shoulder and neck.....OUCH
  85. Wish me luck cause at this point I just want the itching to stop and the right combo of drugs to stay put without wreaking more havoc on my already "on edge" body...

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