Be Joyful in hope, Patient in affliction, faithful in prayer. Romans 12:12

Living in Jophies Jungle Headline Animator

Thursday, July 30, 2009

Roid Rage Patrol............

And so the next steroid reduction begins.......

I reduced Jophies 9 p.m. dose from 15 mg down to 12.5 mg.....In theory this should be a small enough reduction so as not to cause too many problems/complications.

In theory....

In true Jophie form these small calculated reductions almost always bring out the Roid Raging Monster in full force......Typcially we see signs of it ugly head poking ever so slightly out of its deep dark cave around the 24 hour mark......

Just in case this momma is spit shining her armor cause I'm gonna slay me some Roid Dragons!

For now the little prince is sleeping soundly and because this momma has mastered stealth mode he is completely oblivious to the missing 2.5 mg of powdery hormone gold otherwise known as Cortef....

Still no word on Jophies A. Subsidy course this is not from lack of trying....

I am persistant and I do question with boldness.....
I am not afraid to ask for the truth.
In fact I demand it......

When a deer is hit on the road we have the decency to put it out of its misery. Do we not?

We deserve no less.....Agree?

Either you toss us a tourniquet or amputate it makes no matter to me. What does matter is that you must stop the gushing blood that continues to flow aimlessly to the ground....

The truth please......That's all I'm asking

See I even have manners ;)

When the dawn breaks I'll once again begin my dialing quest in hopes of reaching the living breathing person who quite possibly holds the answer to this long awaited question.....

Is Jophie included in your budget?

And, in the event there are any prominent eyeballs peeking in on us I'd like to remind yo to look very closely at who you are hurting.....

You see this smiling face?


How bout this one?


Or maybe this one? He sees angels you know.......



Honestly, I could care less about me but.....


Your messin' with my baby and this momma bear is startin' to growl.....


I'm just sayin'...........

Walking in his SONshine
Trina and Jophie

Monday, July 27, 2009

I'm pooooped..........

Tired
Tuckered
Beat............

Mentally and Physically

You get the idea........

We've had sooo much rain lately that it's been next to impossible to get the grass cut. It seriously had turned into a jungle......Today I managed to wrangle that jungle into submission. It only too 4 1/2 hours. Usually it takes me about 1 1/2 hours which gives you an idea of how out of control that mess was........I'm sooo glad to have that taken care of. At least I can mark one thing off my list.....

There's so much going on that I honestly have no clue where to even begin or end. I'm having trouble wrapping my brain around some things let alone actually yanking it from my brain to here...

We still haven't gotten paid....I was supposed to have heard something today but was unable to get in touch with the person who "supposedly" has that information. I'll try again tomorrow.

Have I mentioned lately how much our government sucks right now? Maybe its only been the walls who've been hearing my ranting and raving? No matter it's still a mess and we're right in the thick of it all.....

I'm not comfortable just yet with telling all but soon if things turn out as we fear this momma is gonna be spewing like Old faithful!

I'm eating bacon by the way......Random

Random is my life lately....I'm seriously all over the board. Good luck following me....LOL

Jophie is doing well.......All smiles as usual with only a few of his normal little "blips" along the way..... Soon we have to do another steroid reduction. I dread it like always and have been putting it off...Bad Momma...I just hate hate seeing that Roid Rage! It's evil I tell ya just plain evil but, we have to muddle through the madness to get to the good on the other side......It's so worth it :0)

Jophie hasn't had much outdoor time bacause of our funky weather. We're hoping that's gonna change soon. We have a Little Tykes sprinkler ball we are dying to let him try. Water is such a "no no" but he loves it so much and I think we've covered all the bases to prevent anything from going wrong. Now bring on the sunshine!

Jophie hangin' out under our little shade tree......


Look how relaxed he is....


He loved it under that shade tree. You'd be surprised how tiny that thing is if you could actually see it in real life. It sure gives a lot of shade though! He could have stayed out longer but it was time for Lora to leave.

Jophies 4th annual Fall Fundraiser is coming up. I'm really excited about the whole thing as it's completely different than what we normally do.

We are having a Hog Roast/Fun day! It's set tentatively for Sept. 19th. The venue is pretty certain but we are just waiting on a verbal on that one. I'm working on the flier but still need that venue before they can go to print.

So far we have The Hog Man who will be roasting the hog and making all the food. The Hog has been donated. We have inflatables donated. We have tables/chairs donated. We have Port-a-Potties donated and you know you gotta have those! :0) We have a ginormous tent donated. We have 2 sheet cakes donated. We have one "very well known" place donating but I can't say what that is just yet.

There is also going to be Horse shoe and Corn Hole Tournements. A softball game. Games for the little ones/Face painting as well as the inflatables. Lots of yummy food! Pulled Pork Sandwiches/Brown/White Beans/Cornbread/Hot dogs & Sauce/Pop/Sno-Cones/Cake/Cupcakes along with other deserts. We hope to have balloons but we're still working on that one. Anyone locally have connections that could help there?

We also need themed baskets for auction/raffle. Lots of them. So far we have one from England coming(Thanks Tia!) One coming from Texas(Thanks Naomi!) One more I can't mention just yet. The good thing is we have several weeks to gather these as well as the other needed items.

We're waiting on phone calls back on a few things and have a bazillion more to make. Lora and I are going to sit down tomorrow and make our lists. "DONE" and "NEEDS DONE" and/or "Waiting to hear back"

We are going to need help as in "bodies" to help with the games/Inflatables/organization ect...You get the idea. I'll be able to take some pictures but Jophies nurses and I will be all swapping off taking care of him throughout the day/evening so someone taking pictures would be ever so helpful.

If you would like to help be it here locally, from afar, Providing a themed basket, Donating a desert, Donating any of the items we are still needing(I will post that list as soon as we get it organized), Any connections you may have to help with needed items/donationse ect.....Please just toss me an email at booboo2003@roadrunner.com or for those who have my number just phone me. I am quite busy with Jophie so I will be adding contact info of others who are close to us and will be helping.

One thing to keep in mind. If you are local and plan to help or stop by please do keep in mind that Jophie is VERY IMMUNE COMPROMISED and visitors are VERY limited. Visitors with ANY COLD SYMPTOMS or illness at all are NOT permitted to come in. I'm sorry if this sounds harsh but Jophies life depends on me following these very strict guidlines.

Did I mention the best part yet? The whole Hog Roast/Fun Day Benefit is FREEEEEE!

Yep! You read that right its FREEEEE! We will be taking donations at the entrance so all donations are appreciated but no worries if you are unable to donate. You just come right on in and have fun! :0)

One more thing to talk about.....

I have a few "new" things to add to Jophies donation section as well as a "Jophies Closet". (More on that later.)

For now I have these......

Blankie Buddies...Holiday Themed for starters

Pumpkin..


Kitty..


These are infant/toddler size at around 10 inches perfect to snuggle with and small enough to drag along in the carseat. I am working on a larger size for the school age child. The twins are 7 and actually loved them and would have taken them home in a heartbeat if given the chance.

If you are interested the infant/toddler blankie buddies are $12.00 Each plus shipping. You can use the donation button in the side bar. Please include "Blankie Buddie" as well as which one you would like with your order.

A quick thank you to those who have purchased cookbooks and a special thank you to Louise. You know what its for and although Thank you seems so inadequate it's truly from my heart. I'd like to thank all the "Little Elves" who seem to be leaving elf prints all over my house. Me thinks they are working overtime as Christmas is still a ways off ;) More to come on the "little Elves" saga.. :0)

Id like to also thank all my friends and family who have prayed for us and just offered a shoulder during these trials. Please do continue as it's still a very scary and uncertain time. I try not to dwell too much on it but reality tends to slap you square in the face totally ruining my Narnia vacation. Yep! I do often look in the closet for Narnia! :0)

And with that this momma needs to go. Lots to still do before my head can even think about hitting the pillow....

Trina and Jophie

Thursday, July 23, 2009

Update.......

It's nearly 5 a.m. and I'm beat. I'll be back with an update with pictures after I get some Zzzzzzz's.....

For now enjoy the new pic of Jophie up top ;)

Trina

Thursday, July 16, 2009

Can't Sleep...........

Mind is racing.......Rest for this weary body just won't come

Wednesday, July 15, 2009

Still Here.........Barely

Seems a bullet kinda post is in order......

  1. Upgraded Norton to 360(Can I just say its evil?) Crashed my computer big time and only after I ripped that thing from my computer have I been able to get back to a somewhat normal web surfing existance.
  2. Jophies doing well aside from his normal "ups and downs" and steroid monster withdrawls.
  3. Rain did finally let up for a time then back again with a vengence flooding us the last 2 times.
  4. We've had quite a few storms with one causing a tree to fall on my house! (No real damage and once again local volunteer fire fighters came to Jophie and my rescue!) :0)
  5. It's been unseasonably chilly for our area this time of year....Very nice evenings in the 50's and 60's. Great for weenie roasts but not so great for day time swimming. Pool temps have been pretty chilly. Hoping for he sunshine to bring those temps back up soon before summers gone!
  6. Puppy sat for the Payne Gang while they vacationed. Have some adorable pics of Jophie and the puppy but will have to be another day.
  7. Tons of pics to post but yet again will have to wait till another day when I have more time.
  8. Hired a new nurse FINALLY! She's wonderful and a perfect fit. More on her later.
  9. State Budget cuts have finally bit into us. As of the phone call I placed yesterday we will not be getting paid for July and no idea when if ever again. I'm to call back first part of August to see if they know what the budget is even going to be. This is NOT our dept. of Job and Familes causing this but rather OUR GOVERNMENT. In fact try wrapping your brain around this. Dept. of Job and Family workers have been asked to work for FREE for an indefinite amount of time. Yep! you read it correctly and you know what? They ARE in fact working FOR FREE because they don't want to abandon any clients who might possibly be without food or shelter. There are even daycare workers that work through the Dept. and Job and Families who are also agreeing to work for FREE just so the childrens parents don't lose what jobs they have. All I can say is God bless them and God help us all.
  10. Still going round and round with wheelchair dude about Jophies wheelchair that we began working on when he was 14 1/2! He's 16 now folks and coming out of this chair! Grrrrrrrr!
  11. No surprise here but more items have been cut and or limited by Medicaid. Great! More to pay out of pocket with our income that we are not getting.
  12. Just to clarify...As of June we were still getting a partial check for Jophie. The other portion there are no funds to cover it. Come August we "may or may not be getting the State portion and more than likely will not be getting the county portion"
  13. Working on Fall/Halloween Kooky hats. Will be posting those soon in Jophies fundraising section as well something new and adorable! Gonna make you wait on that ;)
  14. Cookbooks are still available as well as Loving Jophie wristbands. We have a decent stock left of both which can also be found in his fundraising section.
  15. Gearing up and planning for Jophies 4th annual Fall Fundraiser which as you now know is needed more than ever this year.
  16. Still needing new wheels to transport Jophie. Again let me clarify. We are not looking for new but rather a wreck to be fixed up or a decent used vehicle.
  17. Managed to get Jophie out in the warm sunshine today. Lora and I tackled that mop on his head along with a mani and peti. Yep! He got the works! He lasted outside on the deck for an hour which is great for Jophie these days ;)
  18. Lots going on coupled with lots of stress.......
  19. Lots of prayer needed

Be back soon......

Hanging by our toenails ;)

Trina and Jophie

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